A Super LONG and Long Overdue Post

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Okay, Emmett John is fussy so this is going to be the fastest update I can manage. (Yeah, right. lol) Please forgive me if this seems jumbled and disconnected, Emmett John and Elliott Richard aren’t big on sleep at the moment.

I’m sorry I haven’t posted in nearly forever. I simply haven’t been in the mood, which stinks because I was hoping to partake in NaBloPoMo (National Blog Posting Month) but I can only do so much. I do apologize though if my being MIA has made any of you worry.


About a month ago Gavin was started on a new bi-polar medication, 150mg Trileptal BID. Everything was fine. It seemed to be working. His moods were gradually evening out. Then the bottom fell out. His moods took a nose dive. He began rapid cycling again. So we called Dr. R and he decided to double Gavin’s dose to 300mg BID, which he had planned to do anyway. So two weeks ago, we double the Trileptal. We give Gavin his meds and proceed with getting ready for Gavin and Elliott Richard’s flu shot appointments. On our way to Dr. H’s office for flu shots, Gavin broke out in a serious rash. Dr. H wasn’t in the office but one of the other peds saw him and confirmed that it was a reaction to the Trileptal. She said that there wasn’t anything we could do for the itching (apparently Benedryl doesn’t work on drug reaction rashes), so that was fun. We were told to keep an eye on his breathing etc but told he should be fine. (Ever try explaining to an Autistic 8 year old that he can’t scratch and you can’t help the itch? Yeah, I don’t recommend it.) Since the ped wasn’t worried, we sent Gavin to my Mom’s as planned. At like midnight or 1am our phone rings. Gavin now has a fever, the chills etc. His breathing was fine so Mom gave him Tylenol for the fever and we all went back to sleep. He was fine in the morning so it appeared that the worst had passed. Until he got home. The chills, fever etc had returned. He was now running a 104 degree fever! So Rob is calling Dr. R and Dr. H’s offices trying to figure out what to do. I’m trying to get Gavin comfortable and giving him Tylenol etc. Dr. R’s office decides he has the flu and not a drug reaction at all. Dr. H’s office said to keep a very close eye on him, if anything changed or the fever hit 105 we were told to call back ASAP. To give a general idea of how Gavin was feeling, he went to bed at 5pm and slept through the night until 8am the next day!!!!!! (This is a big deal because I don’t think he’s slept that much since he was Emmett John’s age!) On the bright side, he recovered really quick. On the not-so-bright side, I’m definitely not going to win “Mother of the Year” this year. When Gavin went back to school, I accidentally gave him the 150mg dose of Trileptal. Luckily, he survived and we now know for 100% certain that Dr. H was right (it was a drug reaction) and Dr. R was wrong (it was NOT the flu). So while he broke out in a rash again, he handled it like a champ and it was gone within a day or two. So since this whole drama went down Gavin has been unmedicated for his bi-polar, which at the very least is making things interesting. Rob and I see Dr. R today to figure out what the next step is.

Other than that whole mess, things with Gavin have been fairly….typical for Gavin. He’s rapid cycling. We’re struggling to keep up with him. The whole situation is just exhausting. Of course that could have something to do with the fact that he hasn’t adjusted to the time change at all. He puts himself to bed at 6pm every night and asks for him meals an hour early. We’ve tried to explain it to him but he doesn’t get it. Poor thing. Hopefully he’ll adjust soon.

On a positive note, a few days after the adoption was finalized (we should have the paperwork any day now – woo who!) the school had an Awards Assembly for the students. Gavin received awards for Perfect Attendance (which was blown for this grading period with the drug reaction), an award for meeting his reading goals with his Title 1 tutor, and another one I can’t remember. (Hey, I already told you I wasn’t winning Mother of the Year.) The school even went and changed his name on all of his awards so that they read Gavin G. 🙂

Elliott Richard

Well, unofficially potty training has begun. We’ve started buying Elliott Richard Lightning McQueen Pull-Ups. It took a little bit of convincing to get him to wear them but now he’s in love. He’s now changing his own diapers, well, he’s taking his wet (and dirty – unfortunately) diapers off and then running around the house buck naked screaming “New biper!” He also tells us (sometimes before and sometimes after the diaper removal) that he’s peed or pooped. He will sit on the potty, sometimes for nearly an hour. Then he gets up, puts on a Pull-Up and pees. Oy. So progress is slow and basically non-existent at some points but we are getting there.

During Gavin’s whole Trileptal reaction, Elliott Richard received his flu shot. I expected a lot of tears and screaming. Daddy said that he was fine with the shot. (I was meeting with the ped about Gavin.) It was having his legs held down that ticked him off. Once they let him go, he was fine. lol I swear he never ceases to amaze me.

Other than that stuff, there’s really not much to report in the land of Elliott Richard. He’s still completely obsessed with Emmett John and helping me as much as possible. Which usually means that whatever I’m doing is taking twice as long as it would normally but whatever. He’s growing like a weed. Eating us out of house and home or not eating at all. (I just love the terrible two’s!) And as his hair grows back from his first hair cut, I’m thrilled to say that it is still wavy/curly! 🙂

Emmett John

I think I probably have the most to update on when it comes to Mr. Emmett John.

I’m thrilled to report that Emmett John is now the new and improved wireless version. We saw Dr. K and our nurse Vick at the Apnea Clinic last month (yes, I’m really that behind). The only concern they had was one Apneic episode that wasn’t a full-fledged episode. His breathing slowed way down and then seconds after his breathing picked up again his heart rate dropped. Since they didn’t happen simultaneously, it doesn’t count as a true Apneic Episode and he was cleared for release. 🙂

Since then, he’s gained a few pounds and grew a few inches. He now weighs 17lb 3oz and is 26.75 inches long!!!! That’s the 80th and 90th percentiles respectively!! Craziness I tell ya.

He’s been babbling and laughing (whenever he isn’t screaming in pain from the reflux) for a while now but he’s recently added the squealing to his list of tricks. He seems to have a very select sense of humor though. Only certain silly noises, scaring/startling him and whatever it is Daddy does seems to amuse him. Although there are times now when he will laugh when he hears someone else laugh, which is super cute! He gets super excited when he sees Mommy, Daddy or Elliott Richard. (Gavin hasn’t shown much interest in him so Emmett John doesn’t see him hardly ever.) He’s rolled over but didn’t seem terribly impressed with the accomplishment and hasn’t done it in a while. He can’t decide between his thumb, his Nuk binkie (he’ll take other binkies but strongly prefers the Nuks), and this little blanket I actually bought for Gavin like 7 years ago. He had his first bowl of cereal on Wednesday. In keeping with his tradition of being polar opposite of everything I know from raising Gavin and Elliott Richard, Emmett loves his cereal. I couldn’t shovel it in fast enough. lol He holds on to toys that we hand him for a moment or two but gets the biggest kick out of reaching/batting at his hanging toys on his bouncy seat. Speaking of which, he loves that bouncy seat. He’d sit there and kick (making it bounce) all day long if it weren’t for little annoyances like hunger and diaper changes. lol

We are keeping a close eye on his reflux
because he is on 15mg of Prevacid once a day and he developed a hoarse voice about two weeks ago that isn’t really going away. It hasn’t gotten any worse, which is something I suppose, but it’s not really improving either. We saw Dr. H yesterday for his 4 month checkup and 3 of the 5 vaccines he was due for. Dr. H said to give it until the middle/end of next week, if it hasn’t gone away by then I’m supposed to call back and he’ll send Emmett to a ENT to have his vocal cords checked out. Other than the hoarseness, Mr. Emmett John is practically perfect in every way. And quite possibly the cutest 4.5 month old in the house. 😉

The Adoption & Legal Issues

Not a whole lot to report on this front. The paperwork for the adoption has been filed. We are just waiting on the judge to sign and date them and get them back to my attorney. At that point I can drive around town and change Gavin’s last name with everyone. The school is almost as excited about this as we are. 😉

As for the fact that Gavin will never see them again, well Rob is currently out having “Guy Time” with Gavin to discuss that very fact. Per the suggestion of Dr. R. So I will be sure to update you on how that went when I know more.

There is still the small matter of the contempt motion that Pam filed against me. I filed an objection on September 4th and we just learned that the courts are requesting transcripts from the court date on July 31st. (You know, the court date I didn’t attend because I felt it wasn’t in Emmett John’s best interest?) John, my attorney, emailed Pam’s attorney handling the matter and informed him of the adoption and the circumstances surrounding the adoption and the only response he’s received so far was “I’ll have to get back to you.” This lead me to believe that Pam and/or Nick hadn’t informed him that Nick no longer has any rights to Gavin. That was probably an interesting conversation. The way John has explained it to me, Pam can drop the whole case but since I didn’t do what I was court ordered to do the magistrate can still try and force the jail time issue if he really has a bee in his bonnet over me. This remains to be seen, however, I’ll be sure to let you know as soon as I do.

Life in General

Life in general is…well, it’s life. I’m exhausted. Emmett John gets up at 4am every morning. Elliott Richard usually isn’t too far behind – getting up at 5 or 6am. I’m up so I usually just bring Elliott downstairs with me so that Rob can sleep. That way if we have a few empty hours during the day I can grab a nap. I’ve started seeing my therapist, Nina, again. I love her. She also has a massage therapist, Kim, whom I also love. She does wonders for my fibro, which is currently kicking my butt. So overall, things are…trying to find a new sort of norm.

Okay, I started this at like 8am this morning. It’s now 4pm. Emmett John is screaming because he’s tired and starving. I have a raging migraine. We are going to lay down. (Woo whoo!) As soon as Daddy mows up the leaves. (Stupid lawn. Stupid trees. Stupid fall.)